03/08/2017

Saturday August 19 2017
NATIONAL CONVENTION CENTRE, CANBERRA

Luton’s flagship event is the Luton Charity Ball, which raises money for a selected charity each year. Incredibly, in 2016 the annual Charity Ball raised over $160,000 for Lifeline, Menslink and Ozhelp, and over the past five years Luton has contributed over $800,000 to local charities and communities within Canberra.

Hartley Lifecare are thrilled to be one of three charities supported by this year’s Luton Charity Ball and we need your help 

Please see if you can bring some people together to purchase tickets or a table and support this wonderful fundraising event.

The fabulous Ricki-lee will entertain you… and the incredibly talented Costas Kilias will be your MC for this Santorini (Greek Islands) themed Ball.

Ticket Sales at: iwannaticket.com.au
lutoncharityball.iwannaticket.com.au/…/luton-charity-ball-h…

We really hope to see you there!

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12/05/2017

The Australian Army logo with photos of brass instrument playersThe Band of the Royal Military College presents

MARZIALE

Grand pageantry, colour and precision will be on full display as the Band of the Royal  Military College is joined on stage by students from the ANU School of Music.

Date: 7.00 pm, Thursday 25th May, 2017
Venue: Llewellyn Hall, ANU, Acton

Entry by gold coin donation with all proceeds directly supporting Hartley Lifecare.

Proudly Supported by the Australian National University

 

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12/03/2017

The SPINETINGLING RIDE – ANDREW KEREC’s SOLO 5,450KM JOURNEY ON A MOUNTAIN BIKE TO RAISE FUNDS FOR:

  • Spinal cord repair research/clinical trials (Project Edge)
  • People with physical and complex disabilities (Hartley Lifecare)

And to raise awareness for;

  • Livable Housing Design (Livable Housing Australia)

The ride connects two places near and dear to the hearts of the Kerec family.  Starting at Andrew’s parent’s home in Forde, Canberra on Wednesday 15th March 2017 and ending at a cherished family friend’s home in Humpty Doo, Darwin in May 2017.

ANDREW KEREC – MY STORY

In early 2010 my great mate, business partner and dad, Lud Kerec, went for a light ride on a Sunday afternoon as part of his final ‘wind down’ preparation for the Port Macquarie Ironman event he was going to undertake with my little brother Malcolm on the following weekend.

He was hit by another cyclist who was on the wrong side of the cycle path around a corner and they both came off their bikes.  There were no apparent physical injuries to either of them apart from a few scratches.  The other cyclist got up.  Dad didn’t.  His helmet strap had ‘garroted’ his neck and caused a dislocation of his spine around the C5/C6 vertebrae level.  His spinal cord was intact but badly bruised and dad had instantly lost pretty much all function below his chest including his hands and chest muscles.  While we obviously hoped for some recovery of function in the ensuing months – none came and Dad had become, and remains, a C5/C6 quadriplegic.

Life certainly changed in a heartbeat.

History has shown that our family and friends rallied.  My inspirational mum reinforced to all and sundry what an outstanding person and role model she is.  My unbelievably strong dad regained his health and recovered mentally – and after spending several months at the Prince of Wales Hospital in Sydney – we all came home.

Living with quadriplegia has become my dad’s new ‘normal’.  Living with a quadriplegic has become my family’s new ‘normal’.  We’ve gone boat fishing in Kakadu – beached ourselves on Pococks beach and shared a beer…or two.  We’ve crossed the Canning Stock Route in a 4WD!  Dad is now riding a hand cycle / quadriplegic specific bike and we are planning a boat fishing trip to the Kimberley.

We are all good – we are still mad Kerec blokes and we don’t need any help – that’s not what this ride is about.

It took a while, but even after experiencing such a terrible life changing accident to a loved one, you eventually begin to appreciate that perhaps everything does happen for a reason – and by doing so, you can start looking for ways to create positive outcomes, directions and results.

The reason for this ride

After an accident causing severe spinal cord injury – it is critical that initial treatment/surgery is performed as soon as possible to maximise the chances of any recovery of function.  It is generally only available in the major cities (of which Canberra is not) and well over 24 hours was lost in transferring dad to Sydney after his accident.

In the several months that we were in the Spinal Unit at the Prince of Wales hospital it became very obvious that the biggest barrier to many patients going home was not appropriate recovery, but availability of appropriate care and accommodation.  Some spinal cord injury patients we came to know languished in hospital for up to a year waiting for renovations or housing availability.

The only reason we got Dad back home when he was healthy enough was because my wife and I were able to make modifications to our new home (that was under construction) – and Mum and I provided all of Dad’s health and hygiene care for 12 months.  If we didn’t, he would have remained in hospital for another year.

My dad has conquered the physical and mental impact of his injury, but social exclusion is an ongoing anxiety.  In the majority of cases, he can no longer visit family and friends as he simply cannot access their homes.

So as you can imagine, my family feels very strongly about making changes such as:

  • Improving the availability, range and quality of initial and ongoing treatments and rehabilitation for anyone that suffers a spinal cord injury
  • Increasing the availability and affordability of appropriate care and accommodation options for anyone that suffers a spinal cord injury
  • Increasing the quantity and quality of accessible or easily adaptable homes in general

I hope to go a long way to achieving the above by supporting and raising funds and awareness for an exciting research/clinical trial (Project Edge), a supportive local, not-for-profit organisation (Hartley Lifecare), as well as simple accessible housing design guidelines (Livable Housing Australia).

ANDREW KEREC

 

Starting on Wednesday 15th March and taking approximately 9 weeks to get to Humpty Doo, Andrew will ride over 5,400 km on tracks, fire trails, forest roads and desert trails on his mountain bike to raise funds for two charities that are close to his heart.

Please support Andrew’s incredible efforts by visiting his website / liking the facebook page, considering the Kerec story and making a fully tax deductible pledge:

http://www.thespinetinglingride.com.au

HARTLEY LIFECARE

Hartley Lifecare is a unique and specialised disability service that has provided high quality residential, recreational, respite, transport and community services for children and adults with physical and complex disabilities for over 50 years.  Hartley Lifecare is focused on making a difference for people living with disability, their families and carers within the ACT and surrounding region.

We believe that while disability changes lives forever, it does not have to stop a person from participating in their community or diminish their quality of life.  With special, intensive ongoing support, people with physical and complex disabilities can lead fulfilling lives.

While many disabilities develop before birth, the reality is that a disability or brain injury can happen unexpectedly to anybody at any stage of their life.  Hartley Lifecare exists to support people with a wide range of complex disabilities through our programs and services delivered by our exceptionally skilled and caring staff.

Hartley Lifecare relies on NDIS (National Disability Insurance Scheme) funding, corporate partners and individual donors as well as special events to raise the funds needed to enable us to expand and enhance the services we provide to people living with disability in our local community.

OUR SERVICES INCLUDE:

  • Centre-based child and adult-specific 24 hour respite care program
  • Long term residential support
  • Independent living skills program
  • Recreational respite program
  • Specialised transport service
  • Assistive Technology Program (Ipads, Eye Gaze and Communication devices)

Hartley will be utilising funds from this inspiring event towards the renovation and rebuild of existing facilities that we own for people with disabilities with high and complex needs.

Many of our facilities are getting old and tired and these funds will greatly assist us to upgrade these houses and provide the people we support with a best practice facility and a beautiful home to live in.

SPINALCURE AUSTRALIA

An estimated 15,000 people in Australia live with a spinal cord injury, with one person on average added to this number each day.

The impact of a spinal cord injury (SCI) on someone’s life, and on their family and friends, is cataclysmic.  SCI is of course much more than not being able to walk—it means a person is robbed of their independence and dignity as normal functions, such as bladder, bowel and sexual function, are no longer under the individual’s control.

‘Project Edge’ is a newly formed partnership between the University of Technology Sydney (UTS) and SpinalCure Australia, with support from Spinal Cord Injuries Australia.  Project Edge will see the introduction of a five-year clinical research program in neuromodulation for spinal cord injury at UTS.

Neuromodulation is a ground-breaking research area, pioneered by Professor V. Reggie Edgerton at UCLA, that has shown unprecedented levels of recovery for people with SCI—helping to restore their independence and improve their quality of life in a way no other treatment has thus-far allowed.

Prof Edgerton’s work has so far seen more than fifty (eleven published to date) paraplegic and quadriplegic participants experience life changing sensory and motor function returns.

Some of the most recently published results show it is possible to return some hand-function to people with quadriplegia.  This world-first is an incredibly meaningful result for this patient group, with hand function being their number one desire in terms of recovering function, rated well above standing and walking.

The history of paralysis research is fraught with unfulfilled expectations.  However, medical research has now brought us to a time when a cure is considered inevitable, and neuromodulation is expected to be a key component of this. As such, there is an urgent and compelling need to fund this vital research.

INTERVIEW OPPORTUNTIES IN LEAD UP TO EVENT Andrew Kerec and Lud Kerec – The Spinetingling Ride

Eric Thauvette – CEO, Hartley Lifecare

Kate Retallack – Executive Officer, Marketing and Partnerships, SpinalCure Australia

MEDIA CONTACTS Kellie Edwards, Senior Manager, Fundraising and Marketing

Hartley Lifecare

M: 0409 852 113   or   E: kellieedwards@hartley.org.au

 

Kate Retallack, Executive Officer – Marketing and Partnerships

SpinalCure Australia

M: 0478 045 406     or E: kate@spinalcure.org.au

 

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24/01/2017
Assistive Technology helps those living with a disability to gain greater independence by using technology to communicate with others; to establish control within their own environment and through the provision of technology and training allowing them to perform a range of skills required at work.

Hartley Lifecare partners with Ability Technology based in Sydney to provide a dedicated assessment and training program to help people with a disability gain access to education and skills development, build skills for the future and give them the capacities and help they need to secure and maintain employment. Workshops are held every second month at the Hartley training rooms 6 Hodgson Place, Pearce.

Assistive Technology Visits by Ability Technology for 2017

  • March:  14th, 15th and 16th
  • May: 16th, 17th  and 18th
  • August:  22nd, 23rd  and 24th
  • November: 14th, 15th and 16th

Contact

If you or a person you know could benefit from a free assistive technology assessment please contact the Assistive Technology Coordinator on 02 6282-4411.

Downloads

Download an application form for assessment [PDF: 226KB]

A4 flyer Assistive Technology, NDIS and You

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08/10/2016

DO YOU:

Have the ability to work within this unique residential model as a live in support worker?  We are looking for the right individual who is enthusiastic, reliable, and committed to supporting a young man in his own home, and to work closely with his family to provide a healthy and fulfilling life for this young man.

ARE YOU: 

  • Interested in sharing a home with, and being an ambassador in the community for this young man?
  • Energetic, innovative and believe in inclusive opportunities for people of all abilities?
  • Able to be part of a young man’s life, including interests, assisting with his personal care and general daily living requirements?
  • Able to respect, value and understand his needs?
  • Able to work effectively within a team environment, as well as working independently with a creative and innovative approach?

As the co-resident you will:

  • Share a 3-bedroom house rent free
  • Share household expenses
  • Be paid a salary
  • Be employed through Hartley Lifecare
  • Attend to s personal health, physical and emotional needs/wellbeing
  • Shop with and for, and prepare healthy balanced meals from fresh food
  • Treat the home with respect and maintain a high level of cleanliness
  • Have school type hours and two evenings off during the week
  • Have alternate weekends off
  • Have 4 weeks annual leave
  • Hold a Senior First Aid Certificate, current Australian driver’s licence and car
  • Work closely with this young man’s family and Hartley Lifecare.
  • Obtain and maintain a working with vulnerable people card.

If you are interested in applying for this position, please email hr@hartley.org.au for an Employment Application Form and a Position description.

Hartley Lifecare
Ph: (02) 6282 4411
e-mail: hr@hartley.org.au

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08/10/2016

Are you passionate about creating opportunities for people with disability to live positive and fulfilling lives? Are you enthusiastic, caring, and reliable and believe in inclusive opportunities for people of all abilities?

Do you have the ability to work closely with the families of the people supported, motivate and work alongside other team members who are committed to the integration and inclusion of people with a disability in the community?

Applicants should be self-motivated, reliable, and responsible, have good communication skills and have a passion for the provision of in-home support services to people with disability and their families.

Current Working with Vulnerable People Card, First Aid Certification and Driver’s License is essential. After hours and weekend work is required.

Certificate III in Disability preferred but not essential.

If you are interested in applying for one of these positions, please email hr@hartley.org.au for an Employment Application Form and a Position description.

Hartley Lifecare
Ph: (02) 6282 4411
e-mail: hr@hartley.org.au

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30/06/2016

Kellie's phone 016Hartley Lifecare is a local and specialised disability service that provides high quality residential, recreational, respite, transport and community services for children and adults with physical and complex disabilities, their families and carers living in our local community.

ACT Greens Minister Shane Rattenbury MLA said “Hartley Lifecare has been supporting people living with disability in our local community for over 50 years. Hartley provides important support to ensure that people living with a disability can lead active, connected and fulfilling lives”.

While many disabilities develop before birth, the reality is that a disability or brain injury can happen unexpectedly to anybody at any stage of their life. Hartley Lifecare exists to support people with a wide range of complex disabilities through our programs and services delivered by our skilled and caring staff.

These services include:

  • Centre-based child and adult-specific 24 hour respite care program
  • Long term residential support
  • Independent living skills program
  • Recreational and respite programs
  • Specialised transport service
  • Assistive Technology Program (iPads, Eye Gaze and Communication devices)

Group photo 1HART.R8 for HARTLEY is a fundraising event that involves up to 6 hours of heart pumping indoor cycling and will be run simultaneously at 7 different gyms across Canberra on Saturday 30th July.

  • Alive Health & Fitness – Narrabundah (8am – 2pm)
  • Body Basics – Queanbeyan (12 – 6pm)
  • Elite Physique – Phillip (12 – 6pm)
  • Energy Fitness Centre – Kippax (12 – 6pm)
  • Fitness First – Deakin (12 – 6pm)
  • Southern Cross Health Club – Woden (12 – 6pm)
  • TEAM Fitness Centre – Dickson (10am – 4pm)

‘Hartley Lifecare is calling on the Canberra community to get their HART.R8 pumping and register to participate via Hartley.org.au – set up an Everyday Hero fundraising page and ask family and friends to sponsor you. Your support will help to raise much-needed funds to support children and adults with complex and physical disabilities living in our local community’ said Skier, cyclist, trekker, triathlete, world and Australian record holder, Paralympian, Olympian and Hartley Lifecare Ambassador Michael Milton.

Cropped image 2During HART.R8 for HARTLEY, professionally trained gym instructors will lead the fun filled sessions with fantastic music pumping the entire time. Participants can choose either Individual ($85) or Team participation ($220) and each entry includes a HART.R8 for HARTLEY T-shirt and water bottle.

You can find out more about HART.R8 for HARTLEY and register for the event here: https://everydayhero.com.au/event/hartr8forhartley16

Michael Milton BIO

Skier, cyclist, trekker, triathlete, world and Australian record holder, Paralympian, Olympian….

Michael Milton is one of Australia’s best-known athletes. His four-gold-medal haul at the Salt Lake Winter Paralympic Games endeared him to a sport-loving nation and earned him the title of Laureus World Sportsperson of the Year with a Disability.

Find out more about Michael’s incredible achievements.

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12/06/2016

Get your HART.R8 pumping during our six-hour indoor cycle challenge!

Please join Hartley Lifecare and help transform Brain Injury known as the ‘Invisible Disability’ into a very visible one – it’s amazing what we can achieve when we work together! 💚💚💚

HART.R8 FOR HARTLEY is up to six hours of heart pumping indoor cycling run simultaneously at different gyms across Canberra on Saturday 30th July. Join as a team or an individual, be supported by professional gym instructors, and entry includes a tshirt and water bottle.

Set up a fundraising page today and raise vital funds to support people living in our local community with a brain injury!

Read more about the event: http://www.hartley.org.au/fundraising-events/hart-r8

Register and Donate: https://everydayhero.com.au/event/hartr8forhartley16

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23/02/2016

The following article was included in a staff magazine for Air Services Australia, distributed to 4500 staff Australia wide. It offers a very interesting insight from one of our riders, and raises awareness of Hartley Lifecare’s work to a very wide audience. Thank you Rex! 🙂

Screen Capture of the Air Services Article - links to full size image.

Hartley Lifecycle Challenge

By Rex Clarke

I participated in the Hartley Ability Cycle Challenge in November, riding from Canberra to Charlotte’s Pass and back – a total of just under 450kms – over three days.

By the end of the first day I was hurting all over. However, after hearing a speech by Jordon Milroy, a young man with cerebral palsy, I realised that what I was feeling was nothing. Jordon is an amazing person who faces a much harder battle doing everyday things and his enjoyment and enthusiasm for life is infections. It was a timely reminder why we were doing the ride.

The next day was a climbing day as we made our way to Charlotte’s Pass – the last of the teams got there in a bit over two and a quarter hours. We then had a bit of fun heading back down the long descents, reaching speeds between 80-90kms per hour without trying, followed by a quick dip in the river before the last 20km back to our accommodation.

Having worn ourselves out over two previous days, the return leg of 176km on the last day was a time for teamwork – a rotation of riders dealing with the headwind enabled everyone to make the distance.

Overall, the 288 riders in the event raised more than $500 000.

Thank you to all those who donated.

 

 

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